Upcoming events.
MDA ONEVoice Family Roundtable
The goal of this roundtable discussion is for MDA to hear from young adults (and their family/caregivers) to add personal insight to our ONEVoice survey findings. Additionally, our pharmaceutical supporters will be in the meeting and will be able to hear from you as well to assist them with the work they are doing to serve this community. As we go through the discussion questions, everyone who is comfortable answering each question will have an opportunity to do so.
Muscle Walk
MDA Muscle Walk.
Walk to Empower. Walk to Live.
Move with MDA Muscle Walk to empower people living with neuromuscular disease to live life to their fullest potential.
Undiagnosed Day
The Undiagnosed Diseases Network Foundation (UDNF) in collaboration with the Wilhelm Foundation and Undiagnosed Diseases Network International (UDNI) will be hosting the 2024 Undiagnosed Day event at Harvard Medical School.
This virtual event will include live presentations from Global experts, including patients, caregivers, clinicians, researchers, and other stakeholders providing information about programs and initiatives in the US and across the globe which support the undiagnosed communities.
Please join us as we highlight the great work which is being done across the globe, including the exciting collaborations and other Undiagnosed Diseases Programs (UDP’s).
Participate on social media by using #UndiagnosedDay, #UndiagnosedDay2024
Disability Rights Legislative Day 2024
We are looking forward to bringing advocates to the Capitol on March 13th for a day of visibility and making your voice heard. There will be a rally and opportunities to speak with your legislator about what matters most to YOU. Join advocates from across the state for an exciting day of advocacy and relationship-building. You deserve a place at the table.
Night at the Races
The Flying Pigs Foundation is hosting an adults-only "horse race" event to raise money for the St. Louis Muscular Dystrophy Association.
Self Directed Supports. Division leadership
https://us02web.zoom.us/webinar/register/WN_rqkN7tA8Q1icOunjQhRGww#/registration
Event One
The Disability Leadership Summit will pair meaningful connections with practical learning. You’ll experience:
Inspiring keynotes who are themselves disabled leaders in their organizations
Practical suggestions for developing your direction as a leader
Interactive discussions on such topics as Employee Resource Groups (ERG)/Business Resource Groups (BRG), leadership pathways, and creating inclusive work environments
Networking with other emerging and established leaders with disabilities, along with allies in senior corporate and public service roles